Saturday, July 30, 2016

St Augustine Day Trip

We took the kids on a day trip to St Augustine.  It's the oldest city in Florida and we've always enjoyed walking around it.  There's so much to look at including the building, water, history, and more.  The kids love it.  We make time to have an early dinner and learn something new.  We also go shopping so there is something for all of us to do. 



The only complaint was it was hot and humid    However, that's to be expected in Florida.  So we trudged on with water in our hands  





Friday, July 29, 2016

Five Out Of Five?

You would think that after all of the MRIs I've taken my children to, I would be used to it by now.  Instead, the anxiety builds and I want to vomit and curl up in a ball.  Or cry and scream at the unfairness of life.  Here I am taking my third child in to see if she is also affected by Chiari. 


Lane has been complaining of headaches for the last year as well as had numbness in her fingers and toes.   She also has a lazy eyes and had surgery for that as a toddler, another symptom of Chiari.  
While I put a brave face on for my children, I'm shaking inside.  The memories of Gabriel barely moving cloud my memory as Lane is smiling in the knocking tunnel.  I want to whisk her out of there rather than hold her feet patiently for the fifteen minutes.  
She did such an amazing job staying still.  Far better than I imagined and I reward her with whatever toy her heart desires afterward.  Seven year olds still pick fiscally manageable items.  
I should know next week if my third child finishes our family of Chiarians or if she escapes it.  Either way, she's one amazing child.